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Following on from my previous post about my mum’s fading memory – https://saturdaywalks.wordpress.com/2017/05/04/memory-test/ today was the day we visited the specialist doctor.

Sharon and I accompanied her to the same place as before.

Mum’s memory function has deteriorated quite a bit since the first visit almost two months ago; not so much that she has no awareness of things around her, but nevertheless, there has been a significant decline. E.g. she introduced me to the doctor as her brother.

So, we were not expecting any ‘good’ news.

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The CT scan she’d had showed nothing more than age-related deterioration, her pulse is perfect (72) and the only ‘bad’ (inasmuch as it’s not a worry for this memory process, but it’s not ‘good’) is that her eGFR1 (estimated glomerular filtration rate2) was only 35. This could be another issue to watch, given that it shows moderate to severe loss of kidney function, but for now I’ll stick to the issue of memory.

The doctor mentioned dementia, but then avoided it suggesting that she didn’t like the word (neither do I) and towards the end of our interview suggested that this was Alzheimer’s, without actually dwelling on that. I suspect that once the paperwork all comes through – that’s what will be the diagnosis.

As part of this process, mum had also had to have an ECG, the result of which is that she has to visit the hospital again on July 31st, to see a cardiologist. Today’s doctor knew nothing about that – but promised to follow it up, especially as the drug she was prescribing for my mum depended on heart rate to a certain extent. She phoned me about an hour later to say that the G.P. was out right now, but that she would be in touch again next week. The medication aims to slow down the memory loss process.

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We were then introduced to the local Making Space representative. Making Space provide specialist dementia care alongside support for sufferers that enables them to stay in their own home for as long as possible. At this early stage, we only required information, advice and guidance. Sharon, the lady we met, was superb and was able to put my mum’s mind at rest and to answer the questions we had brought. She is sending me leaflets to read and more information about the services available to my parents. My job will be convincing my dad to take some, if not all of these up.

Some of the support I will be aiming for over the next few weeks will be to find an Admiral Nurse5 to pick up on my mum; to get my dad to reconsider applying for a Power of Attorney over my mum’s health and finances and to apply for Attendance Allowance on behalf of my mum.

Sharon, at Making Space has promised help with all of those.

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I took my mum for a memory test yesterday.

She’s eighty-seven.

Sadly, my mum has been slowly losing her ability to remember certain things, over an extended period of time – probably for about three years. She copes with most things on a daily basis, with help! Without my dad, I suspect that she would have tremendous difficulty coping with day to day things like cooking and eating. This isn’t to say that she isn’t ‘all there’, she is: she takes part in discussions (when she can hear – her hearing aid is not always fully loaded and ‘on’) and retains a wicked sense of humour.

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However, despite not wanting outside help (“David, whilesoever as I can manage, I want no one else coming in here to help**) my dad has been asking the doctor if there’s anything they can do to help my mum. [I have to say right here that I have THE very lowest opinion of my parents’ doctor, both historically and presently]. The result, after a fair amount of nagging is this memory test.

Dad didn’t want to go with my mum as he felt that he would get too upset, which I suppose, after sixty-six years of marriage, is understandable. Also see ** above. So, the original appointment having been when we flew to Spain in March, I visited the centre, rearranged the date, and off we popped yesterday.

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Mum hated the idea of going (I hesitate to say that she was terrified); she accused my dad of going behind her back and of being sneaky (by asking me to go with her instead of him).  Also: “no one told me about this! I’m not losing my memory, I’m ok!” etc. Yet, once there, having been assured for the umptieth time that I would go ‘in’ with her, she was lovely.  She was calm and had no worries. Once the young (very pregnant) nurse had introduced herself and directed us up to her room, mum was the personification of ‘nice old lady’.

elephant-1090828_1280She answered all of the questions as honestly as she knew how and seemed to feel no pressure at all throughout the full hour of questioning. On the standard test, she got 59% (the standard being 85% ish) and for me it was easy to see exactly where she was losing ‘it’. Mental sums and short term memory tasks were very poor, but at longer term knowledge (that is a penguin, that is a kangaroo etc.) she was much better.

She still thinks that she has no problem remembering things (I haven’t had sugar in my tea for forty-five years – yet I’m asked every time we visit) and insists she’s ok with money; but she’s not.

However, she wasn’t fazed by having to go, soon, for a brain scan and then, afterwards, to see a specialist doctor. But those are hurdles to cross further down the line.

What do we hope to get from this?

I’m not sure.

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